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AboutFace USA - AboutFace USA
is a non-profit organization dedicated to providing information, emotional support,
and educational programs to individuals who have a facial disfigurement, and to
their families. National
Alopecia Areata Foundation - The mission of the National Alopecia
Areata Foundation (NAAF) is to support research to find a cure or acceptable treatment
for alopecia areata, to support those with the disease, and to educate the public
about alopecia areata.
Alpha-1 Foundation - The Alpha-1 Foundation provides leadership and
resources that will result in increased research, improved health, worldwide detection
and a cure for Alpha-1 Anititrypsin Deficiency (Alpha-1). Alpha -1 is a genetic
disorder that can cause liver and lung disease in children and adults. The
ALS Association - The mission of the ALS Association is to find a
cure for and improve living with ALS.
Alstrom Syndrome International - This mission of Alstrom Syndrome
International is to provide support, information, and coordination world-wide
to families and professionals in order to treat and cure Alstrom Syndrome.
Alzheimer's Association, Inc. - The mission of the Alzheimer's Association
is to eliminate Alzheimer's disease through the advancement of research and to
enhance quality care and support for individuals, their families and care partners.
American
Autoimmune Related Diseases Association - The American Autoimmune
Related Diseases Association is dedicated to the eradication of autoimmune diseases
and the alleviation of suffering and the socioeconomic impact of autoimmunity
through fostering and facilitating collaboration in the areas of education, public
awareness, research, and patient services in an effective, ethical and efficient
manner. Lance
Armstrong Foundation - The Lance Armstrong Foundation (LAF) believes
that in the battle with cancer, knowledge is power and attitude is everything.
Founded in 1997 by cancer survivor and cycling champion Lance Armstrong, the LAF
provides the practical information and tools people living with cancer need to
live strong.
Arthritis Foundation - The mission of the Arthritis Foundation is
to improve lives through leadership in the prevention, control and cure of arthritis
and related diseases.
Asthma and Allergy Foundation of America - The Asthma and Allergy
Foundation of America (AAFA) is the premier patient organization dedicated to
improving the quality of life for people with asthma and allergies and their caregivers,
through education, advocacy and research.
Prevent Blindness America - Founded
in 1908, Prevent Blindness America is the nation's leading volunteer eye health
and safety organization dedicated to fighting blindness and saving sight.
Network of Strength - National Breast Cancer Organization - The mission of
Network of Strength National
Breast Cancer Organization is to ensure, through information, empowerment and
peer support, that no one faces breast cancer alone.
American Cancer Society - The American Cancer Society is the nationwide
community-based voluntary health organization dedicated to eliminating cancer
as a major health problem by preventing cancer, saving lives, and lessening the
suffering from cancer, through research, education, advocacy, and service.
Chromosome Deletion Outreach, Inc.
- Chromosome Deletion Outreach's mission is to provide support to parents
of children born with rare chromosome disorders, gather and disseminate information
and promote research and a positive community understanding of these disorders.
cleftAdvocate, a program of AboutFace USA - The mission of Cleft
Advocate is to educate, inspire and empower families whose lives are touched by
cleft lip and palate or other craniofacial anomalies.
American Diabetes Association - The American Diabetes Association
is the nation's leading nonprofit health organization providing diabetes research,
information and advocacy. The mission of the Association is to prevent and cure
diabetes and to improve the lives of all people affected by diabetes.
National Down Syndrome Society - The mission of the National Down
Syndrome Society is to benefit people with Down syndrome and their families through
national leadership in education, research and advocacy.
International Mosaic Down Syndrome Association - International Mosaic
Down Syndrome Association is designed to provide emotional support, information
and research to those touched by mosaic Down syndrome.
Easter Seals - Easter Seals has been helping individuals with disabilities
and special needs, and their families, live better lives for more than 80 years.
National
Eczema Association for Science and Education - The National Eczema
Association for Science and Education (NEASE) works to improve the health and
the quality of life of all persons living with atopic dermatitis/eczema, providing
emotional support, information, and resources to those who have the disease as
well as their loved ones, while raising public awareness of the disease.
Epilepsy Foundation - The
Epilepsy Foundation will ensure that people with seizures are able to participate
in all life experiences; and will prevent, control and cure epilepsy through research,
education, advocacy and services.
American Health Information Management - A guide to understanding
and managing your personal health information. This Web site is provided as a
free public service by the American Health Information Management Association
(AHIMA). The AHIMA is a national non-profit professional association dedicated
to the effective management of personal health information needed to deliver quality
healthcare to the public.
National Hemophilia Foundation - The mission of the National Hemophilia
Foundation is education, research and advocacy on behalf of people with bleeding
disorders.
Huntington's Disease Society of America - The Huntington's Disease
Society of America (HDSA) is dedicated to finding a cure for Huntington's Disease
(HD) while providing support and services for those living with HD and their families.
RESOLVE:
The National Infertility Association - The mission of RESOLVE is
to provide timely, compassionate support and information to people who are experiencing
infertility and to increase awareness of infertility issues through public education
and advocacy.
IDEAS: IsoDicentric 15 Exchange, Advocacy & Support - IDEAS
is a non profit organization providing information, education, and support to
families affected by isodicentric and interstitial duplications of chromosome
15; and promoting research and understanding of this rare genetic disorder.
Interstitial Cystitis Association - Founded in 1984, the Interstitial
Cystitis Association (ICA) is a not-for-profit health organization dedicated to
providing patient and physician educational information and programs, patient
support, public awareness and, most importantly, research funding.
American Kidney Fund - The American Kidney Fund is the nation's leading
voluntary health organization serving people with and at risk for kidney disease
through direct financial assistance, comprehensive education, clinical research,
and community service programs.
National Kidney Foundation - The National Kidney Foundation, Inc.,
a major voluntary health organization, seeks to prevent kidney and urinary tract
diseases, improve the health and well-being of individuals and families affected
by these diseases, and increase the availability of all organs for transplantation.
Kidney Cancer Association - The
Kidney Cancer Association is a membership organization made up of patients, family
members, physicians, researchers, and other health professionals. The
Leukemia & Lymphoma Society - The Leukemia & Lymphoma Society
is the world's largest voluntary health organization dedicated to funding blood
cancer research, education and patient services. The Society's mission: Cure leukemia,
lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients
and their families.
American Liver Foundation - The American Liver Foundation (ALF) is
a national, nonprofit organization dedicated to the prevention, treatment, and
cure of hepatitis and other liver diseases through research, education, and advocacy
on behalf of those at risk of or affected by liver disease.
American Lung Association - The American Lung Association fights
lung disease in all its forms, with special emphasis on asthma, tobacco control
and environmental health.
Lupus Foundation of America, Inc. - With more than 200 chapters,
branches and support groups in 30 states, the Lupus Foundation of America (LFA)
is the nation's leading non-profit voluntary health organization dedicated to
finding the causes and cure for lupus. Their mission is to improve the diagnosis
and treatment of lupus, support individuals and families affected by the disease,
increase awareness of lupus among health professionals and the public, and find
the causes and cure.
National Marfan Foundation - The National Marfan Foundation is dedicated
to saving lives, and improving the quality of life for individuals and families
affected by the Marfan syndrome and related disorders.
Marinesco-Sjogren Syndrome - The
purpose of this website is to provide information and support to families affected
by Marinesco-Sjogren Syndrome and to encourage communication between doctors and
researchers interested in this disorder.
National Mental Health Association - The National Mental Health Association
is dedicated to promoting mental health, preventing mental disorders and achieving
victory over mental illness through advocacy, education, research and service.
National Multiple
Sclerosis Society - The mission of the National Multiple Sclerosis
Society is to end the devastating effects of MS.
Myasthenia Gravis Foundation of America, Inc. - The Mission of the
Foundation is to facilitate the timely diagnosis and optimal care of individuals
affected by myasthenia gravis and closely related disorders and to improve their
lives through programs of patient services, public information, medical research,
professional education, advocacy and patient care. The
Myositis Association - The mission of The Myositis Association is
to find a cure for inflammatory and other related myopathies, while serving those
affected by these diseases.
Osteogenesis Imperfecta Foundation - The Osteogenesis Imperfecta
Foundation's mission is to improve the quality of life for individuals affected
by OI through research to find treatments and a cure, education, awareness, and
mutual support. National
Osteoporosis Foundation - The National Osteoporosis Foundation's
mission is to prevent osteoporosis, to promote lifelong bone health, to help improve
the lives of those affected by osteoporosis and related fractures, and to find
a cure. The
Paget Foundation - The Paget Foundation is a national voluntary health
agency whose mission is to provide information on Paget's disease and other bone
disorders and the effects of certain cancers on the skeleton to patients, family
members and health professionals.
The International Pemphigus Foundation - The International Pemphigus
Foundation is a non-profit, tax-exempt organization whose mission is to increase
awareness of pemphigus/pemphigoid, both among the general public and the medical
community; to provide emotional support to patients living with these diseases,
their families and friends; and to advocate research into causes, diagnoses, treatments
and cure.
National Psoriasis Foundation - The mission of the National Psoriasis
Foundation is to improve the quality of life of people who have psoriasis and
psoriatic arthritis. Through education and advocacy, they promote awareness and
understanding, ensure access to treatment and support research that will lead
to effective management and, ultimately, a cure.
Restless Legs Syndrome Foundation - The Restless Legs Syndrome Foundation
is a nonprofit 501 (c)(3) agency that is dedicated to improving the lives of men,
women, and children who live with this often devastating disease. The organization's
goals are to increase awareness of Restless Legs Syndrome (RLS), to improve treatments,
and, through research, to find a cure.
Scleroderma Foundation - The Scleroderma Foundation's mission is
three-fold: To help patients and their families cope with scleroderma through
mutual support programs, peer counseling, physician referrals, and educational
information; to promote public awareness and education through patient and health
professional seminars, literature, and publicity campaigns; to stimulate and support
research to improve treatment and ultimately find the cause of and cure for scleroderma
and related diseases. The
Sjögren's Syndrome Foundation - The Sjögren's Syndrome Foundation
provides patients practical information and coping strategies that minimize the
effects of Sjögren's syndrome. In addition, the Foundation is the clearinghouse
for medical information and is the recognized national advocate for Sjögren's
syndrome.
National Sleep Foundation - The National Sleep Foundation (NSF) is
an independent nonprofit organization dedicated to improving public health and
safety by achieving understanding of sleep and sleep disorders, and by supporting
education, sleep-related research, and advocacy.
Spina Bifida Association of America - The mission of the Spina Bifida
Association of America is to promote the prevention of spina bifida and to enhance
the lives of all affected. The
Sturge-Weber Foundation - The Sturge-Weber Foundation’s mission is
to improve the quality of life for individuals with Port Wine Stains (PWS), Sturge-Weber
Syndrome (SWS) and Klippel-Trenaunay Syndrome (KT).
National Tay-Sachs & Allied Diseases Association - The National
Tay-Sachs & Allied Diseases Association (NTSAD) is dedicated to the treatment
and prevention of Tay-Sachs, Canavan, and related diseases, and to provide information
and support services to individuals and families affected by these diseases, as
well as the public at large. American
Tinnitus Association - The American Tinnitus Association (ATA) is
the national champion of tinnitus awareness, prevention, and treatment.
Tourette Syndrome Association, Inc. - The Tourette Syndrome Association's
mission is to identify the cause of, find the cure for and control the effects
of Tourette Syndrome.
Trisomy 18 Support Foundation, Inc. - The Trisomy 18 Support Foundation's
mission is to guide the search for a cure and treatments, to educate and support
medical professionals, and to create a caring worldwide community for affected
families. American Foundation of Urologic Disease - The mission of the American
Foundation of Urologic Disease is the prevention and cure of urologic diseases
through the expansion of research, education, and patient advocacy.
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